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The Lupus Hub is published by Scientific Education Support Ltd (SES) and is committed to protecting your personal information and being transparent about what information we hold about you. We promise to respect any personal data you share with us and keep it safe.
With open access and science-driven global initiatives, SES provides unbiased disease education through multichannel communications and educational websites such as the Lupus Hub. Our purpose is to provide credible education in lupus where there is an unmet medical need. We do this by providing the latest medical information, live congress coverage, trial updates, drug approvals, case studies as well as expert opinions.
If you have queries about this policy, please contact the Data Protection Officer, Lupus Hub, SES Limited, 3 AC Court, High Street, Thames Ditton, Surrey KT7 0SR, call us on 01372 472140 or email firstname.lastname@example.org
We will obtain personal information about you when you sign up for the Lupus Hub newsletter, participate in a website survey, or create a My Lupus Hub account.
This information is collected to allow us to provide you with the most relevant content & to personalise your experience while using the Lupus Hub. This includes things like:
We collect some infomation about you when you supply this directly by filling out registration or newsletter sign-up forms. This will include a name, email address, occupation & country of practice.
We also collect information about your preferences and website activity when you add bookmarks or areas of interest to your My Lupus Hub dashboard. This will include article names or categories of content you have stored within your profile.
Scientific Education Support uses captured data to create anonymised quarterly reports, for internal teams, external sponsors, and partners to support open-access funding for our website.
We collect this anonymised data to share key performance metrics across our websites, including popular content and categories, our geographic reach including the languages used to read our content.
For registered users, we also collect anonymised information based on personal My Lupus Hub account activity. This may include statistics for selected areas of interest, popular bookmarked content, or aggregated statistics by profession or country of practice.
We do not share any identifying personal information with third parties, supporters, or affiliated organiations. Wherever possible we use aggregated, anonymous data that does not identify individual users on our website.
We will never use personal data you have provided for marketing purposes unless consent is given by you via opt-in in advance, nor will your personal information be passed to any third parties.
We will keep your personal data as long as is required to send you the information you have requested.
All our newsletter emails have a clear 'unsubscribe' link which will remove you from future email communications and delete any personal information held in our database.
If you have previously registered and would like to close your user account and delete any personal information stored, please contact our team using the email address found on the 'Account Settings' page. We will close the account and remove personal information held within 1 month of the initial request.
Under the GDPR you have the right to:
If you wish to find out more about these rights, or obtain a copy of the information we hold about you, please contact us on 01372 472140 or email@example.com
If you are unhappy with any aspect of our handling of your data, you can make a complaint to the Information Commissioner’s Office - https://ico.org.uk/concerns/
Last updated: August 2023